tag:blogger.com,1999:blog-33426694553814017802024-03-13T22:34:10.028-07:00The Life & Times of L M DMark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.comBlogger43125tag:blogger.com,1999:blog-3342669455381401780.post-69808774946695390532014-06-22T14:00:00.001-07:002014-06-22T14:00:47.612-07:00On the rocksImages from the Cow and Calf adventure I had with my brother today.<br />
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<br />Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com0tag:blogger.com,1999:blog-3342669455381401780.post-86457860280677518722014-02-01T14:29:00.003-08:002014-02-01T14:29:22.141-08:00Christmas 2013<div class="separator" style="clear: both; text-align: center;">
Christmas saw me dressed as a Dinosaur, exploring a playground, </div>
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building a railway and playing in our garden</div>
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<br />Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com0tag:blogger.com,1999:blog-3342669455381401780.post-23108330468316234202013-12-01T10:21:00.001-08:002013-12-01T10:21:14.823-08:00Catching up 2013I've been far too busy playing to be posting a lot this year so here is a bit of a catch up post. I had my 5th eye-op this year which was the 4th on my right eye. My pressures are down but variable between 7 and 12 in either eye. For a while now I have been on four types of drops, currently down to three, mostly twice a day.<br />
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In August I turned 3 years old.<br />
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My family and I had two week long holidays, one at Easter in the freezing cold winds at Tenbigh and the other in the glorious sunshine of Norfolk.<br />
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I started going to nursery school in September.<br />
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Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com0tag:blogger.com,1999:blog-3342669455381401780.post-25593791815565424782013-10-19T15:33:00.002-07:002013-10-19T15:33:50.725-07:00One from the songbook<a href="http://www.youtube.com/watch?v=dMSBLXEjPQU&feature=youtu.be">http://www.youtube.com/watch?v=dMSBLXEjPQU&feature=youtu.be</a><br />
Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com0tag:blogger.com,1999:blog-3342669455381401780.post-62619510967614078402012-12-06T11:33:00.001-08:002012-12-06T11:33:03.690-08:00Chicken PotsAfter a weekend of being off my food a bit I came out in spots, Chicken Pots as I call them.<br />
Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com0tag:blogger.com,1999:blog-3342669455381401780.post-83276857026337183022012-08-24T03:01:00.000-07:002012-08-25T03:03:38.242-07:00Eye Op #4Today I had my fourth operation, the third on my right eye, to open the valve to relieve the pressure in my eye. It has been a bit more rigourous as a result I look a bit more battered than I have in the past. Hopefully the proceedure will have worked and my pressures stabalise otherwise I'll require a different proceedure in the future.<br />
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The staff at Huddersfield Royal were once again superb!Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com0Royal Terrace, Huddersfield, West Yorkshire HD3, UK53.6407312 -1.830164553.6383777 -1.8351 53.643084699999996 -1.825229tag:blogger.com,1999:blog-3342669455381401780.post-55499774514523044792012-08-23T03:04:00.000-07:002012-08-25T03:05:13.152-07:00Second Birthday!Thanks to all who sent birthday cards and for the presents. <br />
I spent my second birthday at The Deep in Hull.Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com0tag:blogger.com,1999:blog-3342669455381401780.post-7825766835593873502012-06-16T09:32:00.001-07:002012-06-16T09:52:21.641-07:00June 2012 - Random images<div style="text-align: center;">
Me and my brother exploring rock pools at Flamborough<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjUwaGUJXjWVPGoWG5edBpBlX1RuyJ-LXQYU5tBkOo-mTVQ_rd-bv6JCZCJ8bzMMBR7G8EID4Ry5VCYPoInHj68-jahWZO7VtiIkI_YPT7RsiyqdGo4qP7OgP3hKc1IWvwNu0uFirNs1gQ/s1600/Rockpoolboys.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjUwaGUJXjWVPGoWG5edBpBlX1RuyJ-LXQYU5tBkOo-mTVQ_rd-bv6JCZCJ8bzMMBR7G8EID4Ry5VCYPoInHj68-jahWZO7VtiIkI_YPT7RsiyqdGo4qP7OgP3hKc1IWvwNu0uFirNs1gQ/s400/Rockpoolboys.jpg" width="342" /></a></div>
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On the cliff tops at Bempton</div>
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Charging around the garden with Mummy's hat on</div>
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Reversing on my push along car</div>
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Having a wander after snack on the banks of the River Wharfe</div>
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I can say mama, dada, barbar (that's grandma barbara to you) and Raa Raa (the lion from CBeebies). <br />
The newest addition to my repetoire - playing the harmonica!! Not quite a tune yet but give me time.<br />
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On the medical front I'm now on drops for my glaucoma as the pressures were slightly up at my last EUA and I'm back on special formula instead of milk as it appears that even soy milk upsets my constitution.Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com0tag:blogger.com,1999:blog-3342669455381401780.post-88333853769310040692012-01-15T15:39:00.000-08:002012-01-15T15:39:48.196-08:00Walking like E.T.After several months of cruising around using walls and furniture for balancing I am now getting quite brave and letting go to walk between objects. Sometimes I carry toys in both hands while doing so.<br />
The vision of me walking around has been likened to that of E.T. (whoever that is?)Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com1tag:blogger.com,1999:blog-3342669455381401780.post-89150712361931058052011-11-06T12:27:00.000-08:002011-11-06T12:27:39.573-08:00AA meeting - (AA = Aunty Alison)<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi1BmDAsIQZGcMZeCxxyz_nJMewhu4hnau3HvLdc6plZdCwGY5bzV3Mh-HTc_b2LCojd_fz8eekNe-YtWQr09XxmawF1jwMPtEBrWdDOEGTpXqgebdwhiEIAYP6xID30LkYqpYPqZIPLAU/s1600/PIC_0007.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi1BmDAsIQZGcMZeCxxyz_nJMewhu4hnau3HvLdc6plZdCwGY5bzV3Mh-HTc_b2LCojd_fz8eekNe-YtWQr09XxmawF1jwMPtEBrWdDOEGTpXqgebdwhiEIAYP6xID30LkYqpYPqZIPLAU/s400/PIC_0007.JPG" width="400" /></a></div><div class="separator" style="clear: both; text-align: center;">Kool Dudes - Me and Uncle Kevin</div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_Z2_njiB20n_EAcJtRdmCjeRxIkJbEMHk_KLSqsWPNG2Gr6-jOMpku0_Yf-KbI2qJlxQho-z7guL3dZRdJQ7sdIZByKRqR2kjnBVwm0iv-lh6Gm8m3eONhsmQN8lzDg661ivr64GlqMg/s1600/PIC_0045.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_Z2_njiB20n_EAcJtRdmCjeRxIkJbEMHk_KLSqsWPNG2Gr6-jOMpku0_Yf-KbI2qJlxQho-z7guL3dZRdJQ7sdIZByKRqR2kjnBVwm0iv-lh6Gm8m3eONhsmQN8lzDg661ivr64GlqMg/s400/PIC_0045.JPG" width="400" /></a></div><div class="separator" style="clear: both; text-align: center;">Cousin Laura trying to hide from the camera</div>Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com0tag:blogger.com,1999:blog-3342669455381401780.post-12037099075659793192011-09-23T01:26:00.000-07:002011-09-23T01:26:35.750-07:0023rd September - EUA dayToday I'm due for another examination under anesthetic to see how my eyes are doing pressure-wise and if the valve in my right eye is still open.<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhd-jYW1WzZkfP_XhIles9oDRuwvUGt3xCUXGAKAPRBPVsTUcQ5Boep7AgIZ94AkbwDpXQTESntF-iax-bzxePclXwi06Ip_cCGzqZpZoXoBOjAPHCuXmenpCifXcJdMMaepUQRw-SxLCw/s1600/AUG11+012.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhd-jYW1WzZkfP_XhIles9oDRuwvUGt3xCUXGAKAPRBPVsTUcQ5Boep7AgIZ94AkbwDpXQTESntF-iax-bzxePclXwi06Ip_cCGzqZpZoXoBOjAPHCuXmenpCifXcJdMMaepUQRw-SxLCw/s400/AUG11+012.JPG" width="300" /></a></div>Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com0tag:blogger.com,1999:blog-3342669455381401780.post-30827036294300481262011-08-23T01:19:00.000-07:002011-09-23T01:20:34.464-07:0023rd August - Operation day 3Today I had another operation on my right eye. Everything went well as usual thankfully.<br />
Fingers and toes crossed (though I've not learnt how to do either yet) that my eye valve doesn't heal over the hole. <br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5ZnTQHGRyv2eeCqdsXyK26MZEYC2zO6n27ydaHB8uF5AfDxmIFzDSvAgpswdzaqaPvfsc_TdRHb5zjV86BBSzWUXLcYoORuH63fyDogUwFiUf2K6rVM-Q3JpeN9KD-ieQshdpXZ1haX4/s1600/August2011+100.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5ZnTQHGRyv2eeCqdsXyK26MZEYC2zO6n27ydaHB8uF5AfDxmIFzDSvAgpswdzaqaPvfsc_TdRHb5zjV86BBSzWUXLcYoORuH63fyDogUwFiUf2K6rVM-Q3JpeN9KD-ieQshdpXZ1haX4/s400/August2011+100.JPG" width="400" /></a></div>Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com0tag:blogger.com,1999:blog-3342669455381401780.post-611037577693936012011-07-29T12:27:00.000-07:002011-07-30T13:07:12.639-07:0029th July 2011Today I had another examination under anaesthetic to check on my eye pressures. My left eye is fine but my right eye is going to need operating on again as the proceedure done back in April has now healed and blocked the valve again.<br />
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My next op will be sometime in August.<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjYY5c1F8nZMis9l_oz7cD_G8UrJaCPyUTjhev0YkoaR-rlgT3Rak4fcICC_RI6_l9-hHREm5AsprQ5wEHM524iXlh0oSE3_j-YZNkEBubqi8jB4LzglPj0qkbOZ6CzXHIq7QHXASXQOoU/s1600/July+2011+004.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjYY5c1F8nZMis9l_oz7cD_G8UrJaCPyUTjhev0YkoaR-rlgT3Rak4fcICC_RI6_l9-hHREm5AsprQ5wEHM524iXlh0oSE3_j-YZNkEBubqi8jB4LzglPj0qkbOZ6CzXHIq7QHXASXQOoU/s400/July+2011+004.JPG" width="400" /></a></div>Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com0tag:blogger.com,1999:blog-3342669455381401780.post-31406452158947360452011-07-24T05:19:00.000-07:002011-07-24T05:47:39.119-07:0011 months old being taught the art of climbing stairs<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgL5sjO-AqIQEg9IdD5GCe53v4HO1CA2WT6dvhj6_DdWR5qT3wJmh0qFMWg64QAip1Yuu1QhjEyD0jOFxWvnC564IgAygKiqOMiG2b3rwgqb-bQGedepYK48qGJPDESNEpSxTC-Hf1hNr8/s1600/24th+July+037a.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgL5sjO-AqIQEg9IdD5GCe53v4HO1CA2WT6dvhj6_DdWR5qT3wJmh0qFMWg64QAip1Yuu1QhjEyD0jOFxWvnC564IgAygKiqOMiG2b3rwgqb-bQGedepYK48qGJPDESNEpSxTC-Hf1hNr8/s400/24th+July+037a.jpg" width="300" /></a></div><div style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiJ8PR9HvhCaI1vL-lRZdHQh4nZ5wcpPBMRF5NkreDqvJGV7oIKdW3x5KQCqvrjUf_itYpj3dqw_Y-bI8ANmBmxIusjAFYctqUMk7igkz8rPMg1nYpjvcNFHSkO5YTdGuRXm2-b7z4c8A0/s1600/24th+July+032.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiJ8PR9HvhCaI1vL-lRZdHQh4nZ5wcpPBMRF5NkreDqvJGV7oIKdW3x5KQCqvrjUf_itYpj3dqw_Y-bI8ANmBmxIusjAFYctqUMk7igkz8rPMg1nYpjvcNFHSkO5YTdGuRXm2-b7z4c8A0/s400/24th+July+032.JPG" width="271" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEglyXtfbL9xATt2TX19V-lewtEr_JoeBeRpIpYnZ7Lu3KMxNcqFoOvn62eZl0WwBeHPpw2HMuD0jy72URbNze3fijdsj-GtnJ9JgE9-K28Dl3_xu5USSIxMzN6JDmalliXwC8sJ42JoKmY/s1600/24th+July+041a.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEglyXtfbL9xATt2TX19V-lewtEr_JoeBeRpIpYnZ7Lu3KMxNcqFoOvn62eZl0WwBeHPpw2HMuD0jy72URbNze3fijdsj-GtnJ9JgE9-K28Dl3_xu5USSIxMzN6JDmalliXwC8sJ42JoKmY/s400/24th+July+041a.jpg" width="300" /></a></div>Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com0tag:blogger.com,1999:blog-3342669455381401780.post-5982819714806686602011-06-05T13:04:00.000-07:002011-06-06T02:24:49.282-07:00Weight checkJusrt in case anyone is interested, I now weigh 7.2kg which is 15lb 13 in old money!! Only on the 2nd centile but good enough for my parents for now!<br />
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Also forgot to mention that I met another boy with CG at the hospital. He lives in Leeds but didn't get diagnosed till after his 1st birthday. Please think of Archie as he has had 2 ops now and needs his first doing again and has stitches in his eye- ouch.Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com1tag:blogger.com,1999:blog-3342669455381401780.post-9451607120306685642011-06-03T14:46:00.000-07:002011-06-03T14:48:46.437-07:00Anaesthetic - pah!Well that was certainly an interesting experience! My EUA- examination under anaesthetic- was supposed to be only under gas anaesthetic as i'm so difficult to canulise(?) but eye doc wasn't happy because of it giving false pressure readings.<br />
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So I was given oral meds for sedation......an hr and half later I decided to give in and fall asleep ..... for half an hr!! Then was topped up with midazolam which didn't work so they ended up using a smaller dose of the gas to put me under anyway. by which time we'd been at the hosp 6hrs and I was starving hungry- so was mummy. (Daddy was at home with Luke as he has a bad cold- daddy that is...not Luke)<br />
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The good news is- my pressure readings were fine no drops required . I came round really quickly and had 9oz of milk. Mummy found out that some sedatives have the opposite effect - it's called paradoxical effect!! Everyone at the hospital was certainly amazed that I managed to stay awake after 2 lots of sedation.<br />
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Next stop orthoptics and optometry!! which apparently means i get tested to see if i need glasses.<br />
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All this and it was my big brother's 3rd birthday today. Never a dull moment in the Doveston household!!Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com1tag:blogger.com,1999:blog-3342669455381401780.post-9789551114360705972011-06-01T08:48:00.000-07:002011-06-01T08:48:05.433-07:00Stirling Moss...who's he??Everyone i've seen recently is mightily pleased with my progress.<br />
I can now crawl (like lightning my mummy says), I am standing whenever humanly possible and even trying to walk. I'm still not keen on laying on my back (understatement) and prefer to be on my tummy rather than sitting up.<br />
I am now eating proper food although it's still mush. I have tried finger food but not keen yet. I'm also resisting using a cup but I have had a lot of change lately.<br />
I still hate bright light but I gather that mummy has ordered a cover for the buggy that hopefully will help with that so i can enjoy the great outdoors. <br />
Next hurdle is my EUA ( examination under anaesthetic) on Friday where they will check and see how my eyes are doing after my ops. <br />
Oh and I've got 2 teeth!! Is there no stopping me???? ;-)Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com1tag:blogger.com,1999:blog-3342669455381401780.post-30591997324142690622011-06-01T08:40:00.000-07:002011-06-01T08:40:35.998-07:00Update and then some!Well mummy worked out that i've had 19 appointments since December and that doesn't count all the times i was taken to the local doctor!<br />
I've met 11 different professionals- pediatrician, 2 pediatric opthalmologists, dietician, occupational therapist, physiotherapist, 2 speech and language ladies, 2 ladies from the Visual Impairment team and my health visitor. Wow i'm popular!!Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com0tag:blogger.com,1999:blog-3342669455381401780.post-481971304794679962011-03-24T15:09:00.000-07:002014-12-07T12:09:54.288-08:00Post Op newsAfter my first eye operation I am positively perky and my mum swears that I am able to see far more now. Bring on the next eye op if that is the case!<br />
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The eye operated on looks almost half the size of my other eye which is still waiting for an op. Goes to show that mums know best about their babies health!Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com1tag:blogger.com,1999:blog-3342669455381401780.post-57219661100828822702011-03-22T15:50:00.000-07:002011-03-22T15:50:45.208-07:0022nd March 2011Big day today! My first operation to help with my Glaucoma. The examination of both eyes went well as did the operation on my left eye. The surgeon was very optimistic afterwards.<br />
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There appears to be no damage to the cornea and therefore my sight will not be affected as badly as first thought. I probably will still have sight problems though but only time will tell as to how bad.<br />
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It has also been positive news about the rear of my eyes and we should hopefully have a better understanding after Fridays post op appointment.Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com1tag:blogger.com,1999:blog-3342669455381401780.post-45651909954917752172011-03-12T13:10:00.000-08:002011-03-12T13:12:34.389-08:00Hospital datesMy operation was cancelled as I caught a cold which has gone to my chest making it dangerous for me to be put under anethesia.<br />
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The eye specialist at Calderdale has rung and arranged for me to see him 17th March and has provisionally booked me in for my first op on the 22nd March. Whether something was lost in translation or not he upset my Mummy by saying that I may lose what sight I have left if they don't operate soon. Strange as they couldn't find a full crew for the op to go ahead last week despite the importance!<br />
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Today we received a letter from the LGI asking for my parents to get in touch with my details so they can book me in for a MRI scan which is to see if there are any other problems in my head.Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com1tag:blogger.com,1999:blog-3342669455381401780.post-73441011859136410852011-03-05T14:12:00.000-08:002011-03-05T15:21:55.324-08:00Eye NystagmusHere is some video footage of me just over 6 months old showing my large corneas and my eye nystagmus.<br />
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<div class="separator" style="clear: both; text-align: center;"><iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dynE0R8gXbnKrzLG1RRcFZ9Xr0jFmCW-lQwosUtLe0Eis0km9ByZuCXdKA7A8NjToySucdJbspCEvJx6g5r3Q' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div>Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com1tag:blogger.com,1999:blog-3342669455381401780.post-61723490110328764902011-03-05T13:09:00.000-08:002011-03-05T13:09:50.480-08:00Admitted and then notAfter seeing the Opthalmological Paediatrician (that's easy for me to say!) at Calderdale Royal I was admitted into hospital and put on different medication. After a while day on the new meds I have improved greatly showing that I must have been in quite a bit of discomfort for the past few months. <br />
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I am now spending more awake time playing and exploring though I'm not impressed when my meds are being administered!<br />
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As a result of the improvement I was allowed home for the weekend though I need to return on Monday evening so I'm available for my pre-op checks. My first operation is on Tuesday 8th March 2011.Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com2tag:blogger.com,1999:blog-3342669455381401780.post-6641023054048797842011-03-02T13:19:00.000-08:002011-03-02T13:19:55.057-08:00CalderdaleFound out today that there isn't room for me at Manchester so I'm being taken to Calderdale Royal tomorrow.Mark Dhttp://www.blogger.com/profile/03283316263818200632noreply@blogger.com0