On the rocks

Images from the Cow and Calf adventure I had with my brother today.

Christmas 2013

Christmas saw me dressed as a Dinosaur, exploring a playground, 

building a railway and playing in our garden

Catching up 2013

I've been far too busy playing to be posting a lot this year so here is a bit of a catch up post. I had my 5th eye-op this year which was the 4th on my right eye. My pressures are down but variable between 7 and 12 in either eye. For a while now I have been on four types of drops, currently down to three, mostly twice a day.

In August I turned 3 years old.

My family and I had two week long holidays, one at Easter in the freezing cold winds at Tenbigh and the other in the glorious sunshine of Norfolk.

I started going to nursery school in September.

One from the songbook

http://www.youtube.com/watch?v=dMSBLXEjPQU&feature=youtu.be

Chicken Pots

After a weekend of being off my food a bit I came out in spots, Chicken Pots as I call them.

Eye Op #4

Today I had my fourth operation, the third on my right eye, to open the valve to relieve the pressure in my eye. It has been a bit more rigourous as a result I look a bit more battered than I have in the past. Hopefully the proceedure will have worked and my pressures stabalise otherwise I'll require a different proceedure in the future.

The staff at Huddersfield Royal were once again superb!

Second Birthday!

Thanks to all who sent birthday cards and for the presents.
I spent my second birthday at The Deep in Hull.

June 2012 - Random images

Me and my brother exploring rock pools at Flamborough

 On the cliff tops at Bempton

 Charging around the garden with Mummy's hat on

 Reversing on my push along car

 Having a wander after snack on the banks of the River Wharfe

Latest news and accomplishments

Well - thought an update was in order. So far this year I've learnt to walk unaided, I can now do the baby signs for cat, dog, rabbit, frog, 'more', 'yes', I can also roar like a lion and hiss like a snake!
I can say mama, dada, barbar (that's grandma barbara to you) and Raa Raa (the lion from CBeebies).
The newest addition to my repetoire - playing the harmonica!! Not quite a tune yet but give me time.

On the medical front I'm now on drops for my glaucoma as the pressures were slightly up at my last EUA and I'm back on special formula instead of milk as it appears that even soy milk upsets my constitution.

Walking like E.T.

After several months of cruising around using walls and furniture for balancing I am now getting quite brave and letting go to walk between objects. Sometimes I carry toys in both hands while doing so.
The vision of me walking around has been likened to that of E.T. (whoever that is?)

AA meeting - (AA = Aunty Alison)

Kool Dudes - Me and Uncle Kevin

Cousin Laura trying to hide from the camera

23rd September - EUA day

Today I'm due for another examination under anesthetic to see how my eyes are doing pressure-wise and if the valve in my right eye is still open.

23rd August - Operation day 3

Today I had another operation on my right eye. Everything went well as usual thankfully.
Fingers and toes crossed (though I've not learnt how to do either yet) that my eye valve doesn't heal over the hole.

29th July 2011

Today I had another examination under anaesthetic to check on my eye pressures. My left eye is fine but my right eye is going to need operating on again as the proceedure done back in April has now healed and blocked the valve again.

My next op will be sometime in August.

11 months old being taught the art of climbing stairs

Weight check

Jusrt in case anyone is interested, I now weigh 7.2kg which is 15lb 13 in old money!! Only on the 2nd centile but good enough for my parents for now!

Also forgot to mention that I met another boy with CG at the hospital. He lives in Leeds but didn't get diagnosed till after his 1st birthday. Please think of Archie as he has had 2 ops now and needs his first doing again and has stitches in his eye- ouch.

Anaesthetic - pah!

Well that was certainly an interesting experience! My EUA- examination under anaesthetic-  was supposed to be only under gas anaesthetic as i'm so difficult to canulise(?) but eye doc wasn't happy because of it giving false pressure readings.

So I was given oral meds for sedation......an hr and half later I decided to give in and fall asleep ..... for half an hr!! Then was topped up with midazolam which didn't work so they ended up using a smaller dose of the gas to put me under anyway. by which time we'd been at the hosp 6hrs and I was starving hungry- so was mummy. (Daddy was at home with Luke as he has a bad cold- daddy that is...not Luke)

The good news is-  my pressure readings were fine no drops required . I came round really quickly and had 9oz of milk. Mummy found out that some sedatives have the opposite effect - it's called paradoxical effect!! Everyone at the hospital was certainly amazed that I managed to stay awake after 2 lots of sedation.

 Next stop orthoptics and optometry!! which apparently means i get tested to see if i need glasses.

All this and it was my big brother's 3rd birthday today. Never a dull moment in the Doveston household!!

Stirling Moss...who's he??

Everyone i've seen recently is mightily pleased with my progress.
I can now crawl (like lightning my mummy says), I am standing whenever humanly possible and even trying to walk. I'm still not keen on laying on my back (understatement) and prefer to be on my tummy rather than sitting up.
I am now eating proper food although it's still mush. I have tried finger food but not keen yet. I'm also resisting using a cup but I have had a lot of change lately.
I still hate bright light but I gather that mummy has ordered a cover for the buggy that hopefully will help with that so i can enjoy the great outdoors.
Next hurdle is my EUA ( examination under anaesthetic) on Friday where they will check and see how my eyes are doing after my ops.
Oh and I've got 2 teeth!! Is there no stopping me???? ;-)

Update and then some!

Well mummy worked out that i've had 19 appointments since December and that doesn't count all the times i was taken to the local doctor!
I've met 11 different professionals- pediatrician,  2 pediatric opthalmologists, dietician, occupational therapist, physiotherapist, 2 speech and language ladies, 2 ladies from the Visual Impairment team and my health visitor. Wow i'm popular!!

Post Op news

After my first eye operation I am positively perky and my mum swears that I am able to see far more now. Bring on the next eye op if that is the case!

The eye operated on looks almost half the size of my other eye which is still waiting for an op. Goes to show that mums know best about their babies health!