Jusrt in case anyone is interested, I now weigh 7.2kg which is 15lb 13 in old money!! Only on the 2nd centile but good enough for my parents for now!
Also forgot to mention that I met another boy with CG at the hospital. He lives in Leeds but didn't get diagnosed till after his 1st birthday. Please think of Archie as he has had 2 ops now and needs his first doing again and has stitches in his eye- ouch.